Wedding Advice Requested

You may or may not know this, but I am engaged to be married in 99 days!  The big day is fast approaching and I need the advice of my Sick Chick community.

I've been on the fence over a very important issue:  The guest list.

Here is my problem.  I am considering inviting my rheumy.  I've known him longer than I've known my fiancé, and he brought me back to life when RA stripped the life right on out of me.  On my list of important men in my life, his name definitely lands somewhere in the Top 10.

I do not, however, want him to feel obligated to come (he likely won't) OR to send a gift.  In my opinion, it's more of a gesture than anything else.  Also, what if he does come!?!  I do plan to have a few cocktails, and although he's definitely given me the green light to enjoy them in moderation, I don't want to give him any reason to be concerned.  Who would I seat him with?  What would he think of my family?

I am leaning towards extending the invitation, knowing that it is highly unlikely he would come.  What do you think?

xo
Kat

My Issue With "Smash"

Hello love bugs!  Have you been watching NBC's new show, "Smash," starring Katharine McPhee and Megan Hilty?  It's about all the work and drama that goes into staging a Broadway Musical.  McPhee and Hilty compete for the lead role in the musical, and initially Hilty's character, Ivy Lynn, gets the role of a life time:  Marilyn Monroe.

In last night's episode, however, Ivy comes down with a sore throat or inflamed throat - something of that nature.  Her doctor prescribes her prednisone and this becomes the central challenge of the episode.  Other characters claim prednisone is a miracle drug - it will cure her troubles overnight so that she can continue rehearsing to prepare for a big workshop performance.

After taking her very first dose of this wonderdrug, Ivy almost immediately begins to experience the worst of the possible side effects, including....hallucination!  According to WebMD, this is very rare side effect of the drug.  So rare, in fact, it's about halfway down the list of rare side effects!

As someone who lived on prednisone to get through her first year (plus) of life with RA, I found this extremely far-fetched.  I did experience insatiable hunger AND weight gain AND a small bit of 'roid rage, but hallucinations?  Have any of you, fellow sick chicks and dudes, ever experienced such an extreme side effect?  Hit me up in the comments and let me know!

xo

Kat

Why I WILL Run Another Marathon

When I was in school, I never settled for mediocrity.  I had to have the highest grades, be the most involved, etc. I just needed to be in charge.  I never did anything halfway.  I never settled for average.   

I wanted to be a star.

I would only do things if I could be the star; or be the best there was.

A lot of that still rings true for me today. However, in life, career, and relationships, its not always so easy.  You don’t get a letter grade, or a gold star,  or a check mark next to each thing you need to do. You can try to rise above mediocrity by comparing yourself to others. But no matter what, there will always be people that have it better than you and those who have it worse than you.  There will always be people that have more than you and those who have less than you.

I am truly learning to be happy with myself, my life, my achievements, and my belongings – instead of comparing myself to those of others.

However, if I do want to be the best, and I still need to get those “gold stars,” why not compare myself….to myself?

This is why I will run another marathon.

Yes, it’s a huge accomplishment to TRY to run a marathon and to FINISH a marathon.  But for someone who is always looking for that A+ grade and that 4.0 GPA, and that pat on the back for a job well done, simply finishing a marathon (in seven hours) is not exactly the most pride-inducing feat.

I’ve convinced myself that I am proud of it. And I do proudly say that I did or completed the New York City marathon – but I never say that I ran it. I always include a caveat that I “hobbled” it because I truly hobbled through the last ten miles. Besides, I wouldn’t change the experience of it for anything, because it’s something I did with my sister.  

But seven hours…I have to do better and I can do better.  I’ve learned a lot from my first marathon experience.  SO I am putting it out there right now.:

I will run another marathon.

And this time, I will run it.  If I walk part of the way, so be it.  But I will run the majority of it.

Happy "New" New Year!

I hope you all rang in the New Year with joy and festivities and good health.  I know you are thinking that this girl is completely insane.  It’s already March 1^st and she is wishing me a Happy New Year!?!  But, really, can’t a New Year start any day of the year?  It's a "new" year as of today. 

You know, I am feeling a bit guilty.  I wanted to contribute regularly to this blog…but life has just gotten in the way (as it always does).  

I vow that my "New" New Year’s resolution will be to update this blog and share with you thoughts, opinions, insights, interesting articles, and other such items to help engage in a conversation and create a community with all you sick chicks, sick dudes, and friends and families of my little sicklets. 

With that being said, hit me up in the comments.  Let me know how you started your New Year, and what your "New" New Year’s resolution is going to be.  I can’t wait to hear from you!

xo

Kat

ABC News: Biggest Arthritis Myths

Hello Loves!

We know we have been badly behaved sick chicks, not posting on our blog in what seems like decades.  I have a cavalcade of ideas for future blog posts coming your way, so stay tuned.

In the meantime, have you seen the ABC News article today on the biggest arthritis myths?  Here is a summary of THEIR myths:

1.  It's only for the elderly

2.  Some veggies make it worse

3.  There is no help for the pain

4.  Cracking knuckles is a major cause

5.  Exercise = bad

Do you agree or disagree that all of these are myths?  I personally do notice a different if I OD on red pepper strips and cucumbers.  Moderation is key, as well as having open communication with your Rheumy.

Do you have any myths or urban legends to add to the list?  Hit us up in the comments with your thoughts!

xo

Kat

Baby!!!

Congratulations to fellow NYC Sick Chick Jodi McKee and her husband on their new baby girl! Happy and healthy, mom and baby are doing well.

One Sick Chick's Top Three Tips for a Happy Holiday!

The season of merry is officially upon us!  With it comes visions of sugar plums, toys a-plenty, and, for the very lucky chronically ill, usually a flare or two.  Here on the East Coast, the weather has been surprisingly mild (knock on wood a million times over), so RA pain has been minimal - for me at least.

But the holidays can be overwhelming to any chick, not just a sick one.  And we sick ones have the added fun of possibly finding a painful flare at the bottom of our Christmas stockings!

To get through the holidays with ease and charm, try out one or all of my Sick Chick's Top Three Tips for a Happy Holiday!

1.  Don't Do It All:  Or rather, Don't Do It All Alone.  If you are anything like me, your to-do list is never ending:  gifts, cards, decorations, wrapping, baking - when will it ever stop?  Goodbye, Sanity...Hello, Fatigue!  The holidays are meant to be celebrated with your loved ones, who will surely help if you just ask.  Remember:  You are not in this alone.

2.  Shop Online:  Personally, I could never stand the malls at this time of year, even pre-RA.  Nowadays, I avoid them at all costs.  The crowds make me uncomfortable, the lines make me achy, and I'd prefer not to have to walk a mile before I even make it into the store.  Shop online:  You can compare prices, hunt for bargains (Living Rich With Coupons curates the best deals!) and coupon codes (try Retail Me Not), and click your way through your shopping list.

3.  Stay Away From Sweets:  Who am I kidding?  I am telling people to stay away from sweets and that is nearly impossible for me to do!  Here is the thing, though:  We know chocolate can be a flare-trigger for some.  Even if that is not you, consuming too many baked goods or candy makes even the non-chronically ill sluggish.  So rather than staying away from them, try to limit yourself to one or two favorites.  You will feel better, and your waistline will thank you!

So, Sick Chicks and Dudes, what tips do you have for a totally awesome and flare-free festive season?  Let us know in the comments!  Or tell me how you made out with my top three tips!

xo

Kat

NYC Marathon: Seven Lessons Learned

I learned a lot from my experience in the 2011 NYC Marathon.  From the training, to the fundraising, and, of course, from the actual race itself, there were lessons at every turn.  The marathon truly tested my mental, physical, and emotional well-being and it's safe to say that I am a stronger person because of it.

Here are the top seven things I learned from finishing my first marathon:

Generosity:  I can't say thank you enough to all the people that supported me:  financially and emotionally.  Family, friends, and strangers were overly generous with their donations, kind words, and inspiration.

Just Ask:  When I first signed up to be part of the Arthritis Foundation's marathon team, I had just wrapped up participating in the NYC Arthritis Walk with the Sick Chick Club.  I had raised over 1k for that event, and felt guilty going around to the same friends and family members for more donations.  I developed a plan to reach out to businesses and organizations that I truly loved and supported and asked them for donations in creative ways.  I was amazed at how generous some of these companies were!  Monetary donations, shout outs, articles, free goods - I am still humbled by the outpouring.

You Can't Train Enough:  Somewhere at the end of the summer, I stopped taking my training seriously.  This was a big mistake.  You cannot train enough.  I should have been running more, running longer, stretching, cross and strength training.  But I was tired.  And had other things to do.  And a million excuses.  There are no excuses.  You need to train.  26.2 miles is a lot longer when you don't train enough.  Trust me, I know.

Inspiration:  I can't tell you how much it meant to me to read the comments left here on this blog by individuals who said I've inspired them.  It's hard for me to believe that I could be an inspiration, and this was a role that I did not take lightly.  I thought about every comment I read during the course of the marathon, and also the kind words of encouragement from family and friends.  I hope I can continue to inspire you all.

You Can't Train Enough (Part 2):  Ignore what I wrote earlier, you literally cannot train enough.  Nothing can prepare you for  26.2 miles.  Nothing.  At some point, it becomes less about the physical test and more about the mental games you play with yourself.  Just keep one foot after another and cry if you want to cry, or laugh if you want to laugh - just keep going.  (I both cried and laughed numerous times on the course.)

It's a Mind Battle:  Whether you want to admit it or not, when you are training for a marathon, it is on your brain - constantly.  I can't say that a day passed from the time I signed up until, well, today, that I have not thought about the marathon.  Some days it weighed heavily on my mind, other days it was just in the back of my head somewhere.  But it was always there.  Always.  This giant, looming monster of the unknown.

No Regrets:  When I first finished the marathon, and for a few days after, I felt ashamed by my finish time.  I had expected to do much, much better than I did.  However, my toes ceased being toes and became blisters.  The pain was unbearable.  My sister struggled with runner's knee, which she was in physical therapy for prior to the marathon.  But we stuck with each other and we finished.  I am growing more and more proud of that accomplishment as the days and weeks pass - after all, not many people attempt this, and even less attempt it when they live with an autoimmune disease like RA.  

I have no regrets about the marathon.  I am grateful to have learned these lessons.  Why?  Because I am ready to apply them to marathon #2... (in a few years).

xoxo

Kat

NYC Marathon: Highlights

It's been a little over a week since the NYC Marathon.  The aches and pains have gone away, the blisters have faded, and all that's left are the memories.  What follows is a short recap of what I consider to be the highlights of the race:

My Fellow Runners
What a critical mass!  It's amazing to see the sheer number of people undertaking this great challenge.  It felt good to be part of such a group.

The Crowd
Hands down, the best part of the marathon started the moment our feet left the Verrazzano Bridge, and someone shouted, "Welcome to Brooklyn!"  It didn't stop there - Brooklyn was amazing.  The crowd was vibrant and rowdy, shouting out the names of runners as they went by.  (Many of us had our names printed or ironed onto our shirts - I felt like a celebrity every time shouted "Kat!")  There was live music along the route, along with DJs, and even just locals blasting music from their apartment or car.  What's even better, many spectators had runner's essentials:  tissues, water, chocolate!

The Views
Some of the views of the city were breathtaking!  Crossing over the Pulaski Bridge from Brooklyn to Queens was a very cool moment for me.  Partly because we were entering MY old neighborhood of Long Island City and partly because that afforded us the most amazing view of the NYC skyline.

Support & Energy
Just when we would get tired and think we could go no further, we'd see someone or something on the side of the course to give us the courage to go forward.  My father met up with us at multiple points along the course; we saw friends, family members, celebrities - we stopped to take a picture with Carolina for the Elvis Duran radio show!  Thank you to everyone for being there - especially to fellow Sick Chick Jodi, who was there cheering me on in BK!

The Finish
It took me a LONG TIME to finish.  I will get into that in a later post.  There were times that I was sure I would not be able to finish.  But I did.  And what means the most to me is that I finished right alongside my sister, Adrienne.  Throughout the race, we supported each other when the road ahead seemed impossible.  In the end, we crossed that finish line together, holding hands...and that is something I will never forget.

No RA Pain
'Nuff said...

xoxo
Kat 

DFL Better Than DNF (Google it!)

Well, friends of the NYC Sick Chick blog, I am officially a marathon finisher!  It was a long, hard road (cliche, I know), but I finished.  What's even better, I finished with my sister by my side.

There are so many stories to tell and I promise I blog about each and every single one of them.  But for now, I wanted to offer a quick check in to say I finished and thank you for the support!

xoxo

Kat

Marathon Eve

'Twas the night before the marathon,
when all through the city,
Not a down tree was left to remove,
Central Park oh-so-pretty.
The mile markers were placed
on the street with care,
In hopes that the pavement pounders
would soon be there...


Kat's Marathon Check List:

• Running Gear
• Official Bib/Number
• Throwaway Clothes
• Phone w/music and marathon app
• Chapstick
• Tissues
• Energy Gu
• Nerves
• Courage
• Excitement
• Inspiration

Let's go!!!

A Million Thank Yous

Race week is here! I think what I am about to do JUST sunk in.

I am running the New York City Marathon! 26.2 miles...

I am excited and nervous for Sunday, and extremely anxious for the finish line. I know the energy from the crowd will help encourage me to finish (and that is my ONLY goal), but a major motivator will be the love and support I have received from many people. I plan to express my gratitude to each person/organization individually, but until then...

THANK YOU to:

• My family, including my parents, Melanie and Tom Z.; my sister (who is also running the marathon, Adrienne Z.; my fiancee, Larry P.; his mother, Helayne and brothers Jordan and Zach
• My corporate sponsors PopChips, Saladworks, and Asics
• My fellow NYC Sick Chicks, Jodi M. and Sara N.
• Annie and Rich F.
• Tony and Beth N. (Tony is also running!)
• My Rheumy, Dr. Yee
• Artie and Olga B.
• Candice H.
• Sean and Liz H.
• Erin P.
• Gary and Francine H.
• Gina L.
• Jade M.
• John and Susan Z.
• John and Renee G.
• Jon A.
• Justin and Michele B.
• Dr. Kim V.
• Mario and Cathy H.
• Melissa and Michael S.
• Rob C.
• Carmen and Steve F.
• TJ
• Trudi K.
• Zoe B.

My Rheumy, My Friend

I feel fortunate enough to be at the point in my course of treatment that my 30 minute appointments with my Rheumatologist, Dr. Yee at the Hospital for Special Surgery, are spent mostly catching up. It's clear that he takes a genuine interest in my life, and I in his. He has been one of the most important people in my life over the past 3+ years. He saw me at my worst and has brought me back to my best.

This blog post is dedicated to all the physicians out there that take great care of their patients, are involved in medicine for more than just the money, and who have helped us overcome the greatest obstacles in our lives.

Tell us about your favorite doc - rheumy or otherwise - in the comment section!

xoxo

Kat

Strength

Here I am, a mere three weeks away from my first ever marathon - the New York City Marathon - and probably my only one. As I reflect back on where I came from in this journey to the finish, starting way back when I was first diagnosed with RA (and I thought I'd never have the chance to accomplish this type of a goal), I am amazed by the strength surrounding me:

- The strength of my support system: family, friends, my fiancé.

- The strength of my medication and supplements that have me feeling well enough to DO THIS!

- The strength of my network that supported me with my fundraising efforts and gave me the courage and encouragement to accomplish this. When I feel tired or achy, I think of everyone that believed in me, and I push forward.

-And, perhaps most importantly, the strength I have found within myself, both mentally and physically.

Halfway through a 10 mile run this morning, I found myself in awe of myself. If you had asked me six month ago if I could run 10 miles, I would have laughed in your face. But my body feels strong and able, and my mind feels ready. As short as a few weeks ago, I gave up on a 14 mile run, telling my fiancé that I couldn't do it - and how would I ever be able to complete 26 miles if I can't even do 14?? Now, I feel confident that I can and WILL complete 26.2 miles. Running, walking - whatever it takes.

Look for me at the finish!

Be strong...

xo

Kat

Chronic Pain & Depression

Please click over and read Maya's wonderfully honest story of dealing with depression and chronic pain.

Go, Kat, Go!

Just wanted to link to Sara's great article about Kat's training for the ING New York City Marathon. You can read it over here.

And be sure to take a minute to donate to Kat's fundraising page! Not only is Kat talking a major personal achievement, she's running to raise money for the Arthritis Foundation.
 

Pregnancy and RA

When I was diagnosed with Rheumatoid Arthritis three years ago at age 31, all of the doctors asked how old I was and if I was planning on having children. Up to that point, my husband and I hadn't really thought too much about it. Dealing with RA and all of the lovely medications associated with it really made us stop and think about what we wanted to do. After much research (aside from talking to others with RA and reading as much as I could online, I also read this book) and discussion, we decided to go for it.

Last summer, I stopped taking Methotrexate and then met with a high-risk obstetrician to go over my condition and list of medications. His conclusion was that my case was not high-risk (phew!) and that hopefully my RA would get better during pregnancy. With that huge weight off of our shoulders, my husband and I had to really decide if we were going to go through with it. Like, for real.

We finally decided that yes, we wanted to have a family, and we had better get started. My rheumatologist said I could stay on Humira until we had conceived. So, now here we are at 22 weeks. Things have been going fairly well. I had the usual bouts of nausea and extreme fatigue early on, but that has mostly subsided. Now, I'm left with "normal" RA fatigue. My obstetrician said I could still take my NSAID (Indocin) through the end of the second trimester. However, at my last prenatal visit, some fluid level was a little low, so they asked me to stop taking it. This wouldn't be a problem, except for the fact that I have been feeling pretty bad for the past two weeks. Luckily, I had an appointment with my rheumatologist yesterday, and she prescribed me good old Prednisone to get through the rest of the pregnancy.

I have to say, I'm not thrilled about taking Prednisone, but it is considered fairly safe for pregnancy. What really bums me out, though, is that I haven't gone in to any sort of remission during pregnancy. I was really hoping to feel extra well for these nine months. But if I had to pick between having a good pregnancy with RA symptoms or a not so good pregnancy without RA symptoms, I'd definitely pick the former.

Now, I'm just hoping for enough relief with the Prednisone and that I don't have a major flare after giving birth. And really? Even on bad days, it's still worth it to know that I'm going through all of this so that I can meet my baby in December.

Hurricane Irene

Aside from general hurricane preparedness, be sure to note that arthritis pain will likely be bad on Sunday. Take care everyone! xo

F is for Fatigue

Boy, have I been tired this week. Going to bed early, sleeping late, and generally feeling exhausted. I was so confused as to why this came on so suddenly.

Then, it dawned on me: RA fatigue.

It had been so long that the ugly F word showed up in my life that I actually forgot what it felt like.

I had another a-ha! moment this morning, as I rubbed my wrists and wondered why I was experiencing a flare of pain the last few days - my first flare in months.

The weather in the tri-state area over the last 5-6 days has been cloudy, overcast, rainy, etc. Sometimes it rains, sometimes it's sunny - but mostly it's just in limbo. It's these limbo-weather days that cause the greatest RA strife for me, personally. Some people say weather affects them, others disagree. But I know, for me, I can always feel a snowstorm coming by the way my joints feel. Likewise, these hazy summer days terrorize my wrists.

Mother Nature, make up your mind and make my pain go away!

But I am trying to put a positive spin on all this: I was feeling too good for too long; this was a good reminder that I do, indeed, have something wrong with me - a serious disease that deserves serious attention.

Does the weather trigger any RA pains for you? How do you put a positive spin on your flares? Let me know in the comments below!

xoxo

Kat

p.s. Did you know that I am training for the NYC Marathon - and fundraising for the Arthritis Foundation? Support me with a donation! http://bit.ly/qMcu9H Follow my training on Twitter @zimgirl29

Let's Move Together - Updated w/link!

I'm in! I am officially registered for the New York City Marathon. The race is on Sunday, November 6, 2011 and I couldn't be more excited.

Am I really doing this?

I was able to join through the New York Chapter of the Arthritis Foundation; so in addition to training, I am also fundraising for a cause near and dear to my heart! I hope you all will help me stay motivated, and get motivated to exercise (safely and at your own pace! especially if you have an autoimmune disease) from my efforts. So, I am using the AF Battle Cry, "Let's Move Together!"

Last week, my plan had me running two 3 mile runs, one 4 mile run, and my long weekend run this week was an easy 5-miler. Crazy for a Sick Chick to say 5 miles is easy, huh? Well, it is - next weekend's long run is NINE miles. :)

Stay tuned to the blog as I post my training and fundraising updates. Also, follow me on Twitter (@Zimgirl29), as I will be tweeting as well.

Finally, please consider making a donation. I really need the help to reach my goal!

http://www.ingnyc.kintera.org/faf/donorReg/donorPledge.asp?ievent=477356&lis=0&kntae477356=FF4943BD8ABF4290ABB8ACA4315A8515

xoxo

Kat